Fanny Delehaye^1,2,3,*, Caroline Fayet², Julien Lejeune⁴

Psycho-Oncologie, Vol.18, No.2, pp. 109-115, 2024, DOI:10.32604/po.2024.042737 - 06 August 2024

Abstract School difficulties are common in children cancer survivors and may be prognostic for the success of the patient social reintegration after the disease. Here, we carry out a narrative review of the literature from 2001 to 2022 to assess the school difficulties of these patients, the predictive factors of these difficulties, and the possible long-term consequences. We punctuate this review the practical point-of-view of a teacher dedicated to our hospital, who works with children with chronic diseases such as cancer. Therefore, we expose possible barriers and solutions to improve the scholar reintegration and limit the More >

MARCO INVERNIZZI^1,2,*, NICOLA FUSCO^3,4,*

BIOCELL, Vol.46, No.10, pp. 2221-2223, 2022, DOI:10.32604/biocell.2022.021043 - 13 June 2022

Abstract This article has no abstract. More >

Batool Mousavi^1,*, Marziye Asgari², Mohammadreza Soroush², Reza Amini³, Ali Montazeri⁴

International Journal of Mental Health Promotion, Vol.22, No.1, pp. 11-17, 2020, DOI:10.32604/IJMHP.2020.010901

Abstract Mental disorders tend to be highly prevalent in war survivors. This paper examined the long-term impact of psychiatric disorders of war survivors on the level of health vulnerability among their female spouses. Interviews were conducted with a nationally representative sample of 653 of the partners of male war survivors with disabilities. The war survivors’ database information used to determine the presence of psychiatric disorders. Then the partners of survivors with (N = 333) and without (N = 320) psychological disorders were assessed via the health-related quality of life (HRQOL-SF36) questionnaire. The frequency of depression and… More >

Yun-Jung Choi^#, Eunjung Ko^#,*

International Journal of Mental Health Promotion, Vol.22, No.1, pp. 19-27, 2020, DOI:10.32604/IJMHP.2020.010883

Abstract This study aimed to investigate the mediating effect of disaster relief workers’ job satisfaction in the relationship between their perception of survivors’ rights and their performance of human rights advocacy. Two hundred disaster relief workers in Korea were invited to complete structured questionnaires pertaining to their perception of survivors’ rights, job satisfaction, and their performance of human rights advocacy, and the relationships between these variables were analyzed using correlation and multiple regression analysis. There were significant positive correlations between disaster relief workers’ perception of survivors’ rights, job satisfaction, and performance of human rights advocacy in More >

Michael V. Di Maria¹, Cindy Barrett¹, Carey Rafferty¹, Kelly Wolfe¹, Sarah L. Kelly¹, Deborah R. Liptzin², Dania Brigham³, Adel Younoszai¹

Congenital Heart Disease, Vol.14, No.4, pp. 590-599, 2019, DOI:10.1111/chd.12769

Abstract Background: Children with single ventricle (SV) heart disease who undergo Fontan operation are at risk for developing multiorgan dysfunction. Although survival has improved, significant comorbidities involving multiple organ systems may develop, requiring evaluation and management by many subspecialists. Using data from an internal survey, we documented high care variability for our Fontan population. We then developed a multidisciplinary clinic, designed and implemented a clinical care pathway to decrease variability of patient assessment.
Methods: After creating a multidisciplinary team and a clinical care pathway, we initiated a multidisciplinary clinic (MDC) where patients could see multiple subspecialists during a… More >

Jamie L. Jackson¹, Jennifer Morack², Millie Harris², Jennifer DeSalvo³, Curt J. Daniels⁴, Deena J. Chisolm²

Congenital Heart Disease, Vol.14, No.2, pp. 305-310, 2019, DOI:10.1111/chd.12732

Abstract Objective: The current study aims to identify the rates of lapses in care and loss to follow‐up before age one through age five for white and nonwhite congenital heart disease (CHD) survivors. Nonwhite CHD survivors were hypothesized to experience an earlier lapse in care and be lost to follow‐up than whites.
Design: Patients were from a large pediatric hospital and had (1) at least one outpa‐ tient cardiology clinic visit or cardiac surgery visit before the age of one and (2) a di‐ agnosis of moderate or complex structural CHD. Cardiology outpatient utilization rates were tracked from… More >

Shaji C. Menon¹, Ragheed Al-Dulaimi¹, Brian W. McCrindle², David J. Goldberg³, Ritu Sachdeva⁴, Bryan H. Goldstein⁵, Thomas Seery⁶, Karen C. Uzark⁷, Anjali Chelliah⁸, Ryan Butts⁹, Heather Henderson¹⁰, Tiffanie Johnson¹¹, Richard V. Williams¹

Congenital Heart Disease, Vol.13, No.3, pp. 463-469, 2018, DOI:10.1111/chd.12597

Abstract Introduction: We sought to evaluate the prevalence of delayed puberty and abnormal anthropometry and its association with quality of life (QoL) in young Fontan survivors.
Methods: This was a cross-sectional study at 11 Pediatric Heart Network centers. Demographic and clinical data, anthropomety, and Tanner stage were collected. Anthropometric measurements and pubertal stage were compared to US norms. QoL was assessed using Pediatric Quality of Life inventory (PedsQL). Mixed effects regression modeling adjusting for clustering by center was used to evaluate factors associated with abnormal anthropometry and delayed puberty and associations with QoL.
Results: Of the 299 subjects, 42%… More >

Leda Klouda¹, Wayne J. Franklin¹, Anita Saraf^1,2, Dhaval R. Parekh¹, David D. Schwartz³

Congenital Heart Disease, Vol.12, No.1, pp. 91-98, 2017

Abstract Objective: Congenital heart disease (CHD) can affect the developing central nervous system, resulting in neurocognitive and behavioral deficits. Preoperative neurological abnormalities as well as sequelae of the open heart operations required to correct structural abnormalities of the heart contribute to these deficits. There are few studies examining the neurocognitive functioning of adults with CHD. This study sought to investigate multiple domains of neurocognitive functioning in adult survivors of CHD who had childhood cardiac surgery with either moderate or severe disease complexity.
Design: A total of 48 adults (18–49 years of age) who had undergone cardiac surgery for… More >

Richard J. Dobson¹, Ify Mordi², Mark H. Danton¹, Niki L. Walker¹, Hamish A. Walker¹, Nikolaos Tzemos²

Congenital Heart Disease, Vol.12, No.1, pp. 58-66, 2017

Abstract Objective: Myocardial fibrosis has been associated with poorer outcomes in tetralogy of Fallot, however only a handful of studies have assessed its significance in the current era. Our aim was to quantify the amount of late gadolinium enhancement in both the LV and RV in a contemporary cohort of adults with surgically repaired tetralogy of Fallot, and assess the relationship with adverse clinical outcomes.
Design: Single centre cohort study
Setting: National tertiary referral center
Patients: One hundred fourteen patients with surgically repaired tetralogy of Fallot with median age 29.5 years (range 17.5-64.2). Prospective follow-up for mean 2.4 years (SD… More >

A.L. Estebenet, P.R. Martín

BIOCELL, Vol.26, Suppl.S, pp. 83-89, 2002

Abstract This article has no abstract. More >