Angeles Fuertes-Moure1, Michael Meyer2,3, Anna-Luisa Häcker2,3, Barbara Reiner2,3, Leon Brudy3, Sonia Pértega-Diaz4, Renate Oberhoffer2,3, Peter Ewert2, Jan Müller2,3,*
Congenital Heart Disease, Vol.15, No.4, pp. 217-227, 2020, DOI:10.32604/CHD.2020.011771
- 07 September 2020
Abstract Objective: Health-related quality of life (HRQoL) has become an
important outcome measure for patients with congenital heart disease (CHD).
The aim of this study was to evaluate the natural course of HRQoL from longitudinal assessment in children with CHD. Patients and Methods: From July
2014 to February 2020 this longitudinal study recruited 317 children with CHD
(113 girls, 35.6%) aged 6 to 18 years (11.6 ± 2.9 years). HRQoL was assessed
with the generic, self-reported and age-adapted KINDL® questionnaire. During
a mean follow-up period of 2.2 ± 1.3 years, 195 patients had one HRQoL reassessment, 70 two,… More >