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Search Results (20)
  • Open Access

    ARTICLE

    Higher Child-Reported Internalizing and Parent-Reported Externalizing Behaviors were Associated with Decreased Quality of Life among Pediatric Cardiac Patients Independent of Diagnosis: A Cross-Sectional Mixed-Methods Assessment

    Jacqueline S. Lee1,2, Angelica Blais1,2, Julia Jackson1, Bhavika J. Patel1, Lillian Lai4, Gary Goldfield1,3, Renee Sananes5, Patricia E. Longmuir1,2,3,*

    Congenital Heart Disease, Vol.16, No.3, pp. 255-267, 2021, DOI:10.32604/CHD.2021.014628

    Abstract Background: Pediatric cardiology patients often experience decreased quality of life (QoL) and higher rates of mental illness, particularly with severe disease, but the relationship between them and comparisons across diagnostic groups are limited. This mixed-methods cross-sectional study assessed the association between QoL anxiety and behavior problems among children with structural heart disease, arrhythmia, or other cardiac diagnoses. Methods: Children (6–14 years, n = 76, 50% female) and their parents completed measures of QoL (PedsQL), behavior (BASC-2, subset of 19 children) and anxiety (MASC-2, children 8+ years). Pearson correlations/regression models examined associations between QoL, behavior and anxiety, controlling for age, sex,… More >

  • Open Access

    ARTICLE

    Health-Related Quality of Life, Emotional and Behavioral Problems in Children and Adolescents with Ebstein Anomaly

    Lianne M. Geerdink1,2,*, Malindi van der Mheen3,4, Gideon J. du Marchie Sarvaas5, Irene M. Kuipers6, Stefan Frerich7, Henriëtte ter Heide2, Willem A. Helbing8, Zina Feijzic1, Christian Schroer9, Chris L. de Korte10, Livia Kapusta1,11, Chris M. Verhaak12, Elisabeth M. W. J. Utens3,4

    Congenital Heart Disease, Vol.15, No.6, pp. 457-472, 2020, DOI:10.32604/CHD.2020.012994

    Abstract Background: Due to the improved survival rates of children and adolescents with congenital heart disease (CHD), more attention is now being directed towards their health-related quality of life (HRQoL), emotional and behavioral problems. Ebstein anomaly (EA) is a rare CHD with a broad clinical spectrum. The aim of the current study is to evaluate self- and proxy-reported HRQoL and emotional and behavioral problems in children and adolescents with EA. Methods: In this cross-sectional, multicenter study, we included EA patients (aged 8–17 years), who underwent routine clinical assessments in Dutch university hospitals between May 2017 and March 2019. The Generic Pediatric… More >

  • Open Access

    ARTICLE

    Impact of the COVID-19 Pandemic on Health-Related Concerns, Quality of Life and Psychological Adjustment in Young Adults with Congenital Heart Disease

    Flavia M. Wehrle1,2,3, Markus A. Landolt3,4,5, Beatrice Latal1,3, Sarah Rometsch6, Matthias Greutmann7,*

    Congenital Heart Disease, Vol.15, No.5, pp. 301-308, 2020, DOI:10.32604/CHD.2020.013078

    Abstract Background: The risk for a severe disease course in case of infection with SARS-CoV-2 in young adults with congenital heart disease is largely unknown, potentially leading to uncertainty and anxiety among affected patients. This study aims to investigate health-related concerns, health-related quality of life and psychological adjustment in patients with congenital heart disease compared to healthy peers during the COVID-19 pandemic. Methods: One-hundred patients with congenital heart disease and 50 controls (M = 29.7, SD = 3.8 years) were recruited. They completed an online survey including the assessment of health-related concerns regarding COVID-19, the 12-item Short Form Health Survey and… More >

  • Open Access

    ARTICLE

    Longitudinal Health-Related Quality of Life Assessment in Children with Congenital Heart Disease

    Angeles Fuertes-Moure1, Michael Meyer2,3, Anna-Luisa Häcker2,3, Barbara Reiner2,3, Leon Brudy3, Sonia Pértega-Diaz4, Renate Oberhoffer2,3, Peter Ewert2, Jan Müller2,3,*

    Congenital Heart Disease, Vol.15, No.4, pp. 217-227, 2020, DOI:10.32604/CHD.2020.011771

    Abstract Objective: Health-related quality of life (HRQoL) has become an important outcome measure for patients with congenital heart disease (CHD). The aim of this study was to evaluate the natural course of HRQoL from longitudinal assessment in children with CHD. Patients and Methods: From July 2014 to February 2020 this longitudinal study recruited 317 children with CHD (113 girls, 35.6%) aged 6 to 18 years (11.6 ± 2.9 years). HRQoL was assessed with the generic, self-reported and age-adapted KINDL® questionnaire. During a mean follow-up period of 2.2 ± 1.3 years, 195 patients had one HRQoL reassessment, 70 two, 40 three and… More >

  • Open Access

    ARTICLE

    Factors Associated with Quality of Life of Psychiatric Outpatients with Chronic Pain in South Korea

    Eun-Joo Choi1, So Yeon Yoo2,*

    International Journal of Mental Health Promotion, Vol.22, No.2, pp. 93-104, 2020, DOI:10.32604/IJMHP.2020.011059

    Abstract Chronic pain has a high prevalence rate and is difficult to treat because it is associated with personality, socio-psychological problems as well as physical pain, and thereby degrades one’s quality of life. This study aimed to determine whether psychosocial factors are associated with quality of life among outpatients with chronic pain. The subjects were selected from patients with chronic pain who were receiving outpatient treatment at the mental health department of a university hospital in Seoul, Korea. The participants were 100 patients and the data were collected using structured questionnaires. Patients’ quality of life was significantly positively correlated with pain… More >

  • Open Access

    ARTICLE

    Delayed puberty and abnormal anthropometry and its associations with quality of life in young Fontan survivors: A multicenter cross-sectional study

    Shaji C. Menon1, Ragheed Al-Dulaimi1, Brian W. McCrindle2, David J. Goldberg3, Ritu Sachdeva4, Bryan H. Goldstein5, Thomas Seery6, Karen C. Uzark7, Anjali Chelliah8, Ryan Butts9, Heather Henderson10, Tiffanie Johnson11, Richard V. Williams1

    Congenital Heart Disease, Vol.13, No.3, pp. 463-469, 2018, DOI:10.1111/chd.12597

    Abstract Introduction: We sought to evaluate the prevalence of delayed puberty and abnormal anthropometry and its association with quality of life (QoL) in young Fontan survivors.
    Methods: This was a cross-sectional study at 11 Pediatric Heart Network centers. Demographic and clinical data, anthropomety, and Tanner stage were collected. Anthropometric measurements and pubertal stage were compared to US norms. QoL was assessed using Pediatric Quality of Life inventory (PedsQL). Mixed effects regression modeling adjusting for clustering by center was used to evaluate factors associated with abnormal anthropometry and delayed puberty and associations with QoL.
    Results: Of the 299 subjects, 42% were female.… More >

  • Open Access

    ARTICLE

    A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation

    Christina E. Holbein1, Nicholas D. Fogleman1,2, Kevin Hommel1, Silke Apers3, Jessica Rassart3, Philip Moons3,4, Koen Luyckx3, Maayke A. Sluman5, Junko Enomoto6, Bengt Johansson7, Hsiao-Ling Yang8, Mikael Dellborg4,9, Raghavan Subramanyan10, Jamie L. Jackson11, Werner Budts3,12, Adrienne H. Kovacs13, Stacey Morrison1, Martha Tomlin1, Kathy Gosney1, Alexandra Soufi14, Katrine Eriksen15, Corina Thomet3,16, Malin Berghammer4,17, Luis Alday18, Edward Callus19, Susan M Fernandes20, Maryanne Caruana21, Samuel Menahem22, Stephen C. Cook23, Gwen R. Rempel24, Kamila White25, Paul Khairy26, Shelby Kutty27, Gruschen Veldtman1

    Congenital Heart Disease, Vol.13, No.3, pp. 392-400, 2018, DOI:10.1111/chd.12583

    Abstract Objective: First, to compare QOL and illness perceptions between patients with a Fontan circulation and patients with anatomically simple defects (ie, atrial septal defects [ASD] or ventricular septal defects [VSD]). Second, to explore illness perceptions as a mediator of the association between congenital heart disease (CHD) diagnosis and QOL.
    Design: Cross-sectional observational study.
    Setting: Twenty-four cardiology centers from 15 countries across five continents.
    Patients: Four hundred thirty-five adult patients with congenital heart disease (177 Fontan and 258 ASD/VSD) ages 18-83 years.
    Outcome Measures: QOL and illness perceptions were assessed by the Satisfaction With Life Scale and the Brief Illness Perceptions… More >

  • Open Access

    ARTICLE

    Quality of life and sexual well-being in patients with a Fontan circulation: An explorative pilot study with a mixed method design

    Djoeke Wolff1, Henricus B. M. van de Wiel2, Mirthe E. de Muinck Keizer1, Joost P. van Melle3, Petronella G. Pieper3, Rolf M. F. Berger1, Tjark Ebels4, Willebrord C. M. Weijmar Schultz5

    Congenital Heart Disease, Vol.13, No.2, pp. 319-326, 2018, DOI:10.1111/chd.12576

    Abstract Objective: To get an impression of the quality of life (QOL) and sexual well-being in the Fontan population, and to generate hypotheses for future research.
    Methods: For this cross-sectional pilot study, questionnaires regarding health-related QOL, sexual function and fertility/pregnancy were completed by 21 patients with a Fontan circulation >16 years old, followed at the University Medical Center Groningen, the Netherlands. Semi-structured qualitative interviews were conducted in 8 patients.
    Results: Fontan patients scored significantly lower on general health than their healthy peers (t (19)=-3.0, P = .008), whereas their scores on other QOL domains and sexual well-being were comparable to normal… More >

  • Open Access

    ARTICLE

    Stress and quality of life among parents of children with congenital heart disease referred for psychological services

    Astrida Kaugars1, Clarissa Shields2, Cheryl Brosig3

    Congenital Heart Disease, Vol.13, No.1, pp. 72-78, 2018, DOI:10.1111/chd.12547

    Abstract Objective: The study examined parent stress and health-related quality of life (HRQOL) among families of children with congenital heart disease (CHD) referred for psychological services.
    Methods: Parents of 54 children (85% boys) aged 3 to 13 (Mage = 7.48, SD = 2.38) completed measures to assess parenting stress (Parenting Stress Index – Short Form; Pediatric Inventory for Parents) and the PedsQL Family Impact Module. Medical information was retrieved from medical record review.
    Results: Half of parents of children with single ventricle anatomy had clinically significant levels of parenting stress. Parents of children with single ventricle anatomy reported more frequent illnessrelated… More >

  • Open Access

    ARTICLE

    A restrictive ventilatory pattern is common in patients with univentricular heart after Fontan palliation and associated with a reduced exercise capacity and quality of life

    Alessia Callegari1,2,4, Rhoia Neidenbach2, Ornella Milanesi1, Biagio Castaldi1, Martin Christmann4, Masamichi Ono3, Jan Müller2, Peter Ewert2, Alfred Hager2

    Congenital Heart Disease, Vol.14, No.2, pp. 147-155, 2019, DOI:10.1111/chd.12694

    Abstract Aim: The Fontan circulation is highly dependent on ventilation, improving pulmonary blood flow and cardiac output. A reduced ventilatory function is reported in these patients. The extent of this impairment and its relation to exercise capacity and qual‐ ity of life is unknown and objective of this study.
    Methods: This multicenter retrospective/cross‐sectional study included 232 patients (140 females, age 25.6 ± 10.8 years) after Fontan palliation (19.8% atrioventricular connection; 20.3% atriopulmonary connection; 59.9% total cavopulmonary connec‐ tion). Resting spirometry, cardiopulmonary exercise tests, and quality‐of‐life assess‐ ment (SF‐36 questionnaire) were performed between 2003 and 2015.
    Results: Overall, mean forced expiratory volume… More >

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