Sebastian Udholm1, Camilla Nyboe1, Thomas Meinertz Dantoft2, Torben Jørgensen2,3,4, Charlotte U. Rask5, Vibeke E. Hjortdal1
Congenital Heart Disease, Vol.14, No.5, pp. 803-810, 2019, DOI:10.1111/chd.12808
Abstract Objective: For the first time, we wish to assess the psychiatric burden in adult patients
living with small, unrepaired atrial septal defects (ASD) using register‐based data, com‐
bined with self‐reported measures on levels emotional distress and educational status.
Design: A descriptive study using both the unique Danish registries and validated
psychiatric questionnaires and scales, including: The Symptom Checklist, Whiteley‐7,
and Brief Illness Perception Questionnaire.
Patients: Adult patients with small, unrepairedASD, diagnosed between 1953 and 2011.
Outcome Measures: Number of register‐based psychiatric diagnoses. Additionally,
symptoms of anxiety, depression, somatization, health anxiety, illness perception,
and levels of educational attainment compared to… More >