Christina E. Holbein1, Nicholas D. Fogleman1,2, Kevin Hommel1, Silke Apers3, Jessica Rassart3, Philip Moons3,4, Koen Luyckx3, Maayke A. Sluman5, Junko Enomoto6, Bengt Johansson7, Hsiao-Ling Yang8, Mikael Dellborg4,9, Raghavan Subramanyan10, Jamie L. Jackson11, Werner Budts3,12, Adrienne H. Kovacs13, Stacey Morrison1, Martha Tomlin1, Kathy Gosney1, Alexandra Soufi14, Katrine Eriksen15, Corina Thomet3,16, Malin Berghammer4,17, Luis Alday18, Edward Callus19, Susan M Fernandes20, Maryanne Caruana21, Samuel Menahem22, Stephen C. Cook23, Gwen R. Rempel24, Kamila White25, Paul Khairy26, Shelby Kutty27, Gruschen Veldtman1
Congenital Heart Disease, Vol.13, No.3, pp. 392-400, 2018, DOI:10.1111/chd.12583
Abstract Objective: First, to compare QOL and illness perceptions between patients with a Fontan circulation and patients with anatomically simple defects (ie, atrial septal defects [ASD] or ventricular
septal defects [VSD]). Second, to explore illness perceptions as a mediator of the association
between congenital heart disease (CHD) diagnosis and QOL.
Design: Cross-sectional observational study.
Setting: Twenty-four cardiology centers from 15 countries across five continents.
Patients: Four hundred thirty-five adult patients with congenital heart disease (177 Fontan and
258 ASD/VSD) ages 18-83 years.
Outcome Measures: QOL and illness perceptions were assessed by the Satisfaction With Life
Scale and the Brief Illness Perceptions… More >