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  • Open Access

    CASE REPORT

    Implementation of a High-Risk Outpatient Clinic for Children with Complex Congenital Heart Disease in a Reference Service in Brazil

    Gustavo Foronda1,2, Vanessa Ferreira Amorim de Melo2,3,*, Claudia Regina Pinheiro de Castro Grau4, Ingrid Magatti Piva1, Glaucia Maria Penha Tavares4, Ana Cristina Sayuri Tanaka1, Nana Miura1

    Congenital Heart Disease, Vol.18, No.6, pp. 649-656, 2023, DOI:10.32604/chd.2023.027987 - 19 January 2024

    Abstract Background: Children with congenital heart disease (CHD), even after surgical approaches, and especially those who undergo staged procedures in the first months of life, remain vulnerable to readmissions and complications, requiring very close monitoring and differentiated intervention strategies. Methods: Descriptive and exploratory study, of the experience report type, which presents the process of building the high-risk outpatient clinic for complex congenital heart diseases (AAR) at the Instituto do Coração (InCor). Results: Report of the path taken to structure the AAR, demonstrating the organization, interface with the multidisciplinary team, admission and discharge criteria, training, and patient profile.… More >

  • Open Access

    ARTICLE

    Development of quality metrics for ambulatory care in pediatric patients with tetralogy of Fallot

    Juan Villafane1, Thomas C. Edwards2, Karim A. Diab3, Gary M. Satou4, Elizabeth Saarel5, Wyman W. Lai6, Gerald A. Serwer7, Peter P. Karpawich8, Russell Cross9, Russell Schiff10, Devyani Chowdhury11, Thomas J. Hougen12

    Congenital Heart Disease, Vol.12, No.6, pp. 762-767, 2017, DOI:10.1111/chd.12523

    Abstract Objective: The objective of this study was to develop quality metrics (QMs) relating to the ambulatory care of children after complete repair of tetralogy of Fallot (TOF).
    Design: A workgroup team (WT) of pediatric cardiologists with expertise in all aspects of ambulatory cardiac management was formed at the request of the American College of Cardiology (ACC) and the Adult Congenital and Pediatric Cardiology Council (ACPC), to review published guidelines and consensus data relating to the ambulatory care of repaired TOF patients under the age of 18 years. A set of quality metrics (QMs) was proposed by the… More >

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