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    ARTICLE

    Historical investigation of medical treatment for adult congenital heart disease: A Canadian perspective

    Jennifer L. Lapum1, Suzanne Fredericks1, Barbara Bailey2, Terrence M. Yau3,4, Jennifer Graham5, Ariane J. Marelli6,7

    Congenital Heart Disease, Vol.14, No.2, pp. 185-192, 2019, DOI:10.1111/chd.12716

    Abstract Objective: The number of adults with congenital heart disease (CHD) has increased substantially because of medical advances that are extending life expectancy beyond childhood. A historical investigation is timely not only because of this significant demographic shift, but also because stakeholder engagement is increasingly important in shaping research directions. The study questions were: From the perspective of stakeholders, what is known about the medical treatment for the adult CHD cohort in Canada and how has it changed over time?
    Design/Methods: We harnessed the use of historical research methods and conducted interviews with 21 key informants in order… More >

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