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    ARTICLE

    Identification of adults with congenital heart disease of moderate or great complexity from administrative data

    Jill M. Steiner1, James N. Kirkpatrick1, Susan R. Heckbert2, Asma Habib1, James Sibley3, William Lober3, J. Randall Curtis3

    Congenital Heart Disease, Vol.13, No.1, pp. 65-71, 2018, DOI:10.1111/chd.12524

    Abstract Introduction: There is relatively sparse literature on the use of administrative datasets for research in patients with adult congenital heart disease (ACHD). The goal of this analysis is to examine the accuracy of administrative data for identifying patients with ACHD who died.
    Methods: A list of the International Classification of Diseases codes representing ACHD of moderate- or great-complexity was created. A search for these codes in the electronic health record of adults who received care in 2010–2016 was performed, and used state death records to identify patients who died during this period. Manual record review was completed… More >

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