Katherine B. Salciccioli1, Abiodun Oluyomi2, Philip J. Lupo3, Peter R. Ermis1, Keila N. Lopez1
Congenital Heart Disease, Vol.14, No.5, pp. 752-759, 2019, DOI:10.1111/chd.12819
Abstract Background: Follow‐up at a regional adult congenital heart disease (ACHD) center
is recommended for all ACHD patients at least once per the 2018 ACC/AHA guidelines. Other specialties have demonstrated poorer follow‐up and outcomes correlating with increased distance from health care providers, but driving time to regional
ACHD centers has not been examined in the US population.
Objective: To identify and characterize potential disparities in access to ACHD care
in the US based on drive time to ACHD centers and compounding sociodemographic
factors.
Methods: Mid‐ to high‐volume ACHD centers with ≥500 outpatient ACHD visits
and ≥20 ACHD surgeries annually… More >