Michael V. Di Maria1, Cindy Barrett1, Carey Rafferty1, Kelly Wolfe1, Sarah L. Kelly1, Deborah R. Liptzin2, Dania Brigham3, Adel Younoszai1
Congenital Heart Disease, Vol.14, No.4, pp. 590-599, 2019, DOI:10.1111/chd.12769
Abstract Background: Children with single ventricle (SV) heart disease who undergo Fontan
operation are at risk for developing multiorgan dysfunction. Although survival has
improved, significant comorbidities involving multiple organ systems may develop,
requiring evaluation and management by many subspecialists. Using data from an
internal survey, we documented high care variability for our Fontan population. We
then developed a multidisciplinary clinic, designed and implemented a clinical care
pathway to decrease variability of patient assessment.
Methods: After creating a multidisciplinary team and a clinical care pathway, we initiated a multidisciplinary clinic (MDC) where patients could see multiple subspecialists
during a… More >
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