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    ARTICLE

    Initiating a Fontan multidisciplinary clinic: Decreasing care variability, improving surveillance, and subsequent treatment of Fontan survivors

    Michael V. Di Maria1, Cindy Barrett1, Carey Rafferty1, Kelly Wolfe1, Sarah L. Kelly1, Deborah R. Liptzin2, Dania Brigham3, Adel Younoszai1

    Congenital Heart Disease, Vol.14, No.4, pp. 590-599, 2019, DOI:10.1111/chd.12769

    Abstract Background: Children with single ventricle (SV) heart disease who undergo Fontan operation are at risk for developing multiorgan dysfunction. Although survival has improved, significant comorbidities involving multiple organ systems may develop, requiring evaluation and management by many subspecialists. Using data from an internal survey, we documented high care variability for our Fontan population. We then developed a multidisciplinary clinic, designed and implemented a clinical care pathway to decrease variability of patient assessment.
    Methods: After creating a multidisciplinary team and a clinical care pathway, we initiated a multidisciplinary clinic (MDC) where patients could see multiple subspecialists during a… More >

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