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    ARTICLE

    Comprehensive comparative outcomes in children with congenital heart disease: The rationale for the Congenital Catheterization Research Collaborative

    Christopher J. Petit1, Athar M. Qureshi2, Andrew C. Glatz3, Courtney E. McCracken1, Michael Kelleman1, George T. Nicholson4, Jeffery J. Meadows5, Shabana Shahanavaz6, Jeffrey D. Zampi7, Mark A. Law8, Joelle A. Pettus1, Bryan H. Goldstein9

    Congenital Heart Disease, Vol.14, No.3, pp. 341-349, 2019, DOI:10.1111/chd.12737

    Abstract Clinical research in the treatment of patients with congenital heart disease (CHD) is limited by the wide variety of CHD manifestations and therapeutic options as well as the generally low incidence of CHD. The availability of comprehensive, contemporary outcomes studies is therefore limited. This inadequacy may result in a lack of data‐driven medical decision making. In 2013, clinician scientists at two centers begana researchcollaboration,the Congenital Catheterization Research Collaborative (CCRC). Over time, the CCRC has grown to include nine cardiac centers from across the United States, with a common data coordinating center. The CCRC seeks to… More >

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