Open Access

ARTICLE

Too little too late? Communication with patients with congenital heart disease about challenges of adult life

Lisa X. Deng¹, Lacey P. Gleason², Katherine Awh², Abigail May Khan³, David Drajpuch^2,4, Stephanie Fuller⁵, Leah A. Goldberg², Christopher E. Mascio⁵, Sara L. Partington^2,4, Lynda Tobin^2,4, Adrienne H. Kovacs³, Yuli Y. Kim^2,4

1 Department of Medicine, University of California, San Francisco, San Francisco, California
2 Division of Cardiology, The Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania
3 Knight Cardiovascular Institute, Oregon Health & Science University, Portland, Oregon
4 Division of Cardiovascular Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania
5 Division of Cardiothoracic Surgery, The Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania

* Corresponding Author: Yuli Y. Kim, MD, Philadelphia Adult Congenital Heart Center, Penn Medicine and The Children’s Hospital of Philadelphia, 3400 Civic Center Boulevard, Perelman Center for Advanced Medicine, 2nd floor East Pavilion, Philadelphia, PA 19104‐5127. Email: