Open Access

ARTICLE

Patients with congenital heart defect and their families support genetic heart research

Paul C. Helm¹, Ulrike M. M. Bauer^1,2, Hashim Abdul‐Khaliq^2,3, Helmut Baumgartner^1,4, Hans‐Heiner Kramer⁵, Christian Schlensak^2,7, Thomas Pickardt¹, Anne‐Karin Kahlert^5,6*, Marc‐Phillip Hitz^5*

1 National Register for Congenital Heart Defects, DZHK (German Center for Cardiovascular Research), Berlin, Germany
2 Competence Network for Congenital Heart Defects, DZHK (German Center for Cardiovascular Research), Berlin, Germany
3 Department of Paediatric Cardiology, Saarland University Medical Center, Homburg, Germany
4 Center for Adults with Congenital Heart Defects (EMAH‐Center), University Hospital Muenster, Muenster, Germany
5 Department for Congenital Heart Disease and Pediatric Cardiology, DZHK (German Center for Cardiovascular Research), University Hospital Schleswig‐Holstein ‐ Campus Kiel, Germany
6 Institute for Clinical Genetics, Faculty of Medicine Carl Gustav Carus, Dresden, Germany
7 Department of Thoracic and Cardiovascular Surgery, University Medical Center Tübingen, Tübingen, Germany

* Corresponding Author: Paul Christian Helm, Dipl.‐Psych. Nationales Register für angeborene Herzfehler e. V., Augustenburger Platz 1, Berlin, Germany. Email: