Open Access

ARTICLE

Congenital heart disease patients’ and parents’ perception of disease-specific knowledge: Health and impairments in everyday life

Paul C. Helm¹, Sebastian Kempert², Marc-André Körten¹, Wiebke Lesch³, Katharina Specht³, Ulrike M. M. Bauer^1,3

1 National Register for Congenital Heart Defects, DZHK (German Center for Cardiovascular Research), Berlin, Germany
2 Institute for Educational Studies, Humboldt University of Berlin, Berlin, Germany
3 Competence Network for Congenital Heart Defects, DZHK (German Center for Cardiovascular Research), Berlin, Germany

* Corresponding Author: Paul C. Helm, National Register for Congenital Heart Defects, Augustenburger Platz 1, Berlin 13353, Germany. Email: