Open Access

ARTICLE

Development of quality metrics for ambulatory pediatric cardiology: Transposition of the great arteries after arterial switch operation

Carissa M. Baker-Smith¹, Karina Carlson², Jose Ettedgui³, Takeshi Tsuda⁴, K. Anitha Jayakumar⁵, Matthew Park⁶, Nikola Tede⁷, Karen Uzark⁸, Craig Fleishman⁹, David Connuck¹⁰, Maggie Likes¹¹, Daniel J. Penny¹²

1 Department of Pediatrics/Division of Pediatric Cardiology, University of Maryland School of Medicine, Baltimore, Maryland, USA
2 Department of Pediatrics/Division of Pediatric Cardiology, Children’s Mercy Hospital, Kansas City, Missouri, USA
3 Department of Pediatrics/Division of Pediatric Cardiology, University of Florida, Jacksonville, Florida, USA
4 Department of Pediatrics/Division of Pediatric Cardiology, Alfred I. DuPont Hospital for Children, Wilmington, Delaware, USA
5 Department of Pediatrics/Division of Pediatric Cardiology, University of Virginia, Charlottesville, Virginia, USA
6 Pediatrix Medical Group - Northwest Children’s Heart Care, Tacoma, Washington, USA
7 California Pacific Medical Center, San Francisco, California, USA
8 Department of Pediatrics/Division of Pediatric Cardiology, University of Michigan Congenital Heart Center, Ann Arbor, Missouri, USA
9 Department of Pediatrics/Division of Pediatric Cardiology, The Heart Center at Arnold Palmer Hospital for Children, Orlando, Florida, USA
10 Janet Weis Children’s Hospital, Danville, Pennsylvania, USA
11 Department of Pediatrics/Division of Pediatric Cardiology, Seattle Children’s Hospital, University of Washington, Seattle, Washington, USA
12 Department of Pediatrics/Division of Pediatric Cardiology, Baylor College of Medicine and Texas Children’s Hospital, Houston, Texas, USA

* Corresponding Author: Carissa M. Baker-Smith, University of Maryland School of Medicine, 110 S. Paca Street, 7th floor, Baltimore, MD 21201. Email:

Congenital Heart Disease 2018, 13(1), 52-58. https://doi.org/10.1111/chd.12540

Abstract

Objective: To develop quality metrics (QMs) for the ambulatory care of patients with transposition of the great arteries following arterial switch operation (TGA/ASO).
Design: Under the auspices of the American College of Cardiology Adult Congenital and Pediatric Cardiology (ACPC) Steering committee, the TGA/ASO team generated candidate QMs related to TGA/ASO ambulatory care. Candidate QMs were submitted to the ACPC Steering Committee and were reviewed for validity and feasibility using individual expert panel member scoring according to the RAND-UCLA methodology. QMs were then made available for review by the entire ACC ACPC during an “open comment period.” Final approval of each QM was provided by a vote of the ACC ACPC Council.
Patients: Patients with TGA who had undergone an ASO were included. Patients with complex transposition were excluded.
Results: Twelve candidate QMs were generated. Seven metrics passed the RAND-UCLA process. Four passed the “open comment period” and were ultimately approved by the Council. These included: (1) at least 1 echocardiogram performed during the first year of life reporting on the function, aortic dimension, degree of neoaortic valve insufficiency, the patency of the systemic and pulmonary outflows, the patency of the branch pulmonary arteries and coronary arteries, (2) neurodevelopmental (ND) assessment after ASO; (3) lipid profile by age 11 years; and (4) documentation of a transition of care plan to an adult congenital heart disease (CHD) provider by 18 years of age.
Conclusions: Application of the RAND-UCLA methodology and linkage of this methodology to the ACPC approval process led to successful generation of 4 QMs relevant to the care of TGA/ ASO pediatric patients in the ambulatory setting. These metrics have now been incorporated into the ACPC Quality Network providing guidance for the care of TGA/ASO patients across 30 CHD centers.

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